Parkinson's Links

PD Links

Parkinson's Disease Internet Links. Famous Patients with Parkinson & PD Resources

Famous Parkinson's Patients:
The Pope - Pope John Paul II
Michael J Fox - Movie Actor
Janet Reno - Former Attorney General
Peter Hofmann - German Super Star - Opera Singer

Web Links - Parkinson's Disease Links - PD Clinicals - Parkinsons's Links

Clinical Trials - Parkinson's Disease

Veritas Medicine: Parkinson Clinical Trials

PD Trials Online: Parkinson Clinical Trials (PDtrials.org )

Parkinson's Institute: The Parkinson's Institute (Sunnyvale, CA)

Parkinson's Disease Foundation: www.pdf.org (New York, NY)

New England Journal of Medicine: Adherence to Medication

Canadian Parkinson's Society: www.parkinson.ca

American Parkinson's Disease Association: www.apdaparkinson.org

Parkinson Disease: Electronic medication reminders for Parkinson's patients.

Parkinson's Information: www.parkinsonsinfo.com

National Parkinson's Foundation: www.parkinson.org

Parkinson’s Resource Organization: www.parkinsonsresource.org

Parkinson's Healing Well features medical news, health articles, doctor-produced video webcasts, message boards and chat rooms, email, newsletters, books and reviews, and resource directories on Parkinson's Disease: www.healingwell.com Vote on www.medclock.com!

The Harvard Parkinson's Web: pdweb.mgh.harvard.edu | A Health Directory

e-pill in Parkinson's Media
Parkinson's Disease FoundationThe Parkinson's Disease Foundation (PDF) is a leading national presence in Parkinson's disease research, patient education and public advocacy.

A company called e-pill, LLC worked with Parkinson’s patients to develop two other pill-reminder devices that caught my eye. These are the “Six-Alarm Vibration or Sound Medication Reminder Watch” ($99.95) and the “Multi-Alarm Pill Box Timer” ($49.95). View their range of devices at www.medclock.com. The six-alarm vibrating watch, which is disguised as a handsome sports-watch, discreetly allows you to be out and about, and reminds you that it is time for your medications. The alarm can be set to either vibrate or to produce a sound.

The “Multi-Alarm Pill Box Timer”, tested by a panel of Parkinson’s patients, has a built-in pillbox and has switches that slide when programming it. These switches slide making it easier to program than using the buttons found on other models. Up to thirty-six reminders can be programmed.

Vibrating Watch 6 Alarms

Vibrating Watch 6 Alarms MeDose

Digital watch with six built-in vibrating (or sounding) alarms designed for Parkinson's Patients (or any Patient) who need to be reminded to take medication at specific times during the day. (click to enlarge photo)

Very popular medication reminder. Vibrating wrist watch ideal for PWP (People with Parkinson's).

Parkinson's Disease Foundation (PDF) writes: The six-alarm vibrating watch, which is disguised as a handsome sports-watch, discreetly allows you to be out and about, and reminds you that it is time for your medications.

Only SIX - ALARM VIBRATING WATCH on the market!
Discreet and Easy to Use Watch Vibrates! - Time to take your pills!

Multi-Alarm (up to six alarms per day)
Vibratiing or Sound Alarm
Vibrating discreet alarm helps hearing impaired patients
Count Down/Up Timer (up to 99 minutes)
Auto Calendar
Back Light - EASY to READ display

This watch is for everybody who does not want the world around him or her to know they are on medications. The e-pill Vibrating MeDose Watch works as a discreet reminder (in meetings, in school, church etc. ) for your Parkinson's medications.

Manufacturer: ROLAND the apple pro production inc.
Warranty: One Year Warranty. 30-Day Money Back Guarantee.
Color....: Black/Silver w/ Black leather strap.
Size.....: Watch size 1 1/2" x 1/2" | Watch digits 1/4" size

37 Alarm Pillbox Timer EasytoSet

Parkinson's Pillbox. Easy to Set Timer. 37 Daily Alarms. 7 Compartment Pill Tray

Our popular e-pill Multi-Alarm Timer with built-in Pillbox. Simply slide a switch to set the daily repeating alarm! Up to 37 daily alarms starting at 6 in the morning with a switch for every hour and half hour (6AM, 6:30AM, 7AM, 7:30AM and so on until midnight). click on any image to enlarge it. No reset required (automatic reset at midnight every day). Other e-pill Medication Reminders. e-pill Pocket Multi-Alarm

Never forget to take your parkinson disease (PD) meds again!

Simple to use PILL BOX & MEDICATION REMINDER TIMER

Slide switch programming (hour/top row switches or half-hour/bottom row switches)

Multiple daily alarm settings (up to 37 alarms) - from 6 AM to Midnight. No need to reset alarm - Repeats every day!

Complete with batteries

Used in clinical trials

Easy-to-Set, award winning e-pill pill timer and organizer. Clear lid allows you to verify alarm settings. Easy to hear LOUD ALARM (4 kHz). Uses 2 AAA batteries (included) for long lasting battery life (one year or more).

Size 5 3/4” x 2 1/8” x 1”. Weight 5 oz. Batteries: AAA (2) included. Color: White

Pill Capacity: 15 Aspirin sized tablets fit in each compartment | Pill Compartments: 7 (seven).

Warranty: 1 Year Warranty. 30-Money Back Guarantee.

12 Alarm Vibrating Pager

Vibrating Pager Timer with 12 Daily Alarms

PAGER: Pager Sized Vibrating Multi Alarm with up to 12 Daily Alarms and Count-Down timer from e-pill for Parkinson's disease patients or any patient taking multiple daily medications! Never forget to take your Parkinson's Disease pills again! Avoid Medication Errors & Feel Better. Popular Vibrating Pill Timer for anyone with an active lifestyle. FREE Gift with every order.

NO MONTHLY FEES ever! (Does not operate via radio transmitter). Compact size. This pager sized e-pill medication reminder fits in your PURSE or wear it on your BELT. No Reset required and will alarm at the same time everyday! Also has a count down timer. (click photos to enlarge) | Other Multi-Alarm Pill Timers | More Vibrating Watches and Pagers.

STRONG Vibrating Alarm (Vibration or Sound)

Up to 12 Daily Alarms. No reset required (repeats daily)

Fits in your Pocket, Purse or use included Belt Clip

Count down timer and more!

Some programing required

No Monthly FEES or Paging Service required

The e-pill Pager Vibrating Medication Reminder is an innovative and compact medication pill reminder (alarm clock type device). You can set up to 12 alarm times per day - by Choose Vibration or Sound with the slide switch on the side. Use this discreet reminder in the office, in church or at the movies ... only you will know when it alerts you. Great with hearing impaired (as well as visual-impaired). Improves patient compliance for yourself or a loved one! Flexible Alarm Settings - Duration / Strength / Number of Alarms. Makes a Great Gift. 30-Day Money Back Guarantee.

For you convenience, we will set the clock to the correct time and your time zone. Never forget to take your medicine again!

Size 2 1/4" x 1 1/2" x 1/2" | Digit size 1/8" | Weight 2 oz. w/ AAA battery | Sturdy belt clip and battery included.

Warranty: 1 Year Warranty. 30-Day Money Back Guarantee.

Medication Reminders NEWS

Click here for the PDF story: PDF Mailbag: Managing Our Medications

Parkinson's Disease Foundation writes about our pill timers:

TIMING AND REMINDERS

For me, the most important part of my daily routine is to take my pills ON TIME. Like other mere mortals, I do forget when I am distracted .......

A company called e-pill, LLC worked with Parkinson’s patients to develop two other pill-reminder devices that caught my eye. These are the “Six-Alarm Vibration or Sound Medication Reminder Watch” and the “Multi-Alarm Pill Box Timer”. View their range of devices at www.medclock.com. The six-alarm vibrating watch, which is disguised as a handsome sports-watch, discreetly allows you to be out and about, and reminds you that it is time for your medications. The alarm can be set to either vibrate or to produce a sound.

The “Multi-Alarm Pill Box Timer”, tested by a panel of Parkinson’s patients, has a built-in pillbox and has switches that slide when programming it. These switches slide making it easier to program than using the buttons found on other models. Up to thirty-six reminders can be programmed.

Vibrating Interval Pill Timer

Vibrating (or by Sound) Silent Interval Timer & Alarm Ideal for Frequent Parkinson's Disease (PD) Medications

Great vibrating countdown timer (up to 99 hours) from e-pill ideal for frequent Parkinson's medications (PD).

Strong V-I-B-R-A-T-I-O-N! A silent alarm (vibration) or sound alarm reminds the Parkinson's Patient to take his or hers medications on time. Remembers the interval used last = simple reset.

Discreet pocket-sized (fits in purse / shirt pocket) or your belt! Count Down Timer (interval timer can be set up to 99 hours) & Daily Alarm. Simple re-start.

NO MONTHLY fees. 30-Day Money Back Guarantee. Great interval timer from e-pill the leader in electronic medication reminders.

The e-pill Vibrating Countdown Timer and Alarm is an innovative simple to-use medication pill reminder (alarm clock type device). Improves patient compliance for every Parkinson disease patient! Makes a great gift.

Long vibration (60 seconds).

Suitable for persons with Parkinson's Disease (PD) taking frequent meds.

Easy to use.

Memory recall for count down function.

Easy to read LCD display.

Specifications: Set count down timer for up to 99 hours. Use Start/Stop button to start count down. The alarm will vibrate (or sound) for 60 seconds. Press Start/Stop twice (reset and start count down).

Size 3 1/2" x 1 1/2". Uses long life AAA battery (included). CE marked. Weight: 2 oz incl. battery. Digit Size: 1/4".

For you convenience we will set the clock to the correct time and time zone. Your e-pill Vibrating Count-Down Timer is ready to go when you receive it. Never forget to take your Parkinson's medicine again!

Warranty: 1 Year Warranty. 30-Day Money Back Guarantee.

Pocket Timer 37 Alarms

e-pill Multi-Alarm Pill Timer

Easy to Set Pocket Pill Timer with 37 Daily Alarms

e-pill Multi-Alarm is an innovative simple to-use medication pill reminder (alarm clock type device) for patient with Parkinson's (PD). This e-pill was invented by a Parkinson's Patient!

One of our most popular items. You can set up to 37 alarm times per day - on the hour or half hour. This is the best multi-alarm pill timer found on the market today! Improves patient compliance for yourself or a loved one! Makes a great gift. 30-Day Money Back Guarantee. Easy to program pill reminder. (click to enlarge photo)

Simple to use MEDICATION REMINDER

Slide switch programming (hour/top row switches or half-hour/bottom row switches)

Pocket-sized, fits in purse or shirt pocket

Multiple daily alarm settings (up to 37 alarms) - from 6 AM to Midnight.

No need to reset alarm - Repeats every day!

Complete with batteries and soft protective carrying case

Missed Pill Indicator

Used in Clinical Trials

Our e-pill Multi-Alarm is an innovative simple to-use medication pill reminder (alarm clock type device). One of our most popular items. You can set up to 37 alarm times per day - on the hour or half hour. This is the best multi-alarm found on the market today! Improves patient compliance for yourself or a loved one! Makes a great gift. 30-day money back guarantee. Easy to program pill reminder.

Slide a switch at the desired alarm time (on the hour or half hour). You set it once, and the alarm will reset itself at midnight for the next day. Easily change your medical reminders (for example - if you want to sleep-in tomorrow!). Alarms can be set on the hour (top row) or half hour (bottom row) from 6:00 AM to Midnight (up to 37 times = 37 switches per day = up to 37 pill reminders per day). Easy to set & easy to verify alarm settings by looking at the switches! Very popular with Parkinson's patients. Customer comments. I already have this e-pill multi-alarm... husband ordered for me. Works great. We are ordering this one for our daughter and her family C.W.
Order ON-LINE by pressing order button below. Easy to set - Easy to change pill reminder alarms.

Not suitable for persons with hearing difficulties (high pitched tone).

Specifications

The alarm will sound for 10 seconds on 10 seconds off for 4 minutes.

Missed pill indicator (MISSED PILL?).

Price $39.95 includes batteries and case. FREE S&H (US only)

Small, fits in your purse or shirt pocket! (Size 5 1/2" x 1 1/4").

For you convenience we will set the clock to the correct time and time zone. Your e-pill Multi-Alarm POCKET Medication Reminder is ready to go when you receive it. Never forget to take your Parkinson's Medications again!

Size: 5 1/2 inch x 1 1/4 inch x 1/2 inch. Battery: G10 (2) included. Battery life: One (1) Year.

Warranty: One Year Warranty. 30-Day Money Back Guarantee.

Clinical Trial

What Does Participation in a Parkinson Disease Clinical Trial Involve?

This issue of Informed Decisions provides a brief overview of the clinical trial process. Of course, every clinical trial is different; each study is conducted according to a detailed plan known as a protocol which specifies what is supposed to happen and when. The protocol includes a schedule for when to take the study medication and when to come in for clinic visits for physical exams, tests, and other procedures. The goal of this overview is to help you make a well-informed decision about clinical trial participation.

First Visit:
Clinical Trial Participation

If you find a clinical trial that may be appropriate for you, you may want to discuss this with your doctor, the study coordinator, and other family or friends. The next step is to schedule a visit to the clinic or hospital where the study is being conducted to determine if you qualify for the study. During this first visit, often called a screening visit, you will be asked questions about your medical history to see if you match the eligibility criteria for the clinical trial.

Every clinical trial has a list of criteria specifying who can take part in the study. These guidelines are called eligibility criteria or inclusion/exclusion criteria. The criteria are listed in the study plan or protocol and include such characteristics as gender, age, health problems, and previous or current treatments.

The eligibility criteria are designed to ensure the scientific validity of the study and to protect participants in the study. These criteria are important is in producing scientifically reliable results. For example, only people with a confirmed diagnosis for the relevant disease or condition are eligible to participate to ensure the study drug is being properly evaluated. The criteria exclude those who might have difficulty with the study drug or procedures involved in the research. For example, a person who takes a medication that has been shown to have an adverse effect when taken with the study drug will not be allowed to participate.

Informed Consent

Before enrolling in a clinical trial, the study doctors and nurses will explain the key facts, risks, and benefits about the study and answer any questions that you may have. This is a process that is known as informed consent. Informed consent begins before you agree to participate in a trial and continues as long as you are in the study.

The process of informed consent includes verbal discussions and the written informed consent document. You will be given a written consent form that you can take home to read and discuss. You will be asked to sign the written form before beginning the clinical trial.

The March 15, 2002 issue of Informed Decisions, Practical Guide to the Informed Consent provides additional information about the informed consent process and includes a sample informed consent form and explanations of why each section of the written form is necessary and important.

Participation

Participation in a clinical trial begins when you qualify for the study at the screening visit and sign the informed consent form. In studies involving more than one study drug or a study drug and a placebo, you will be randomly assigned to receive one of the study medications. You will be given a schedule of study visits and procedures with instructions describing what to do, when to take study drug and where the visits will take place. Studies could include the following types of visits: home visits with a visiting nurse, telephone visits, outpatient visits to the hospital or clinic and inpatient stays in the hospital. You will have contact numbers of study staff if you have questions at any time. It is important for you to follow all instructions, for example, going to all scheduled visits, having all tests and study procedures and taking study drug on time.

Most studies have roughly three periods or phases: baseline, treatment and follow-up.

Baseline: Baseline visits usually occur before you receive the study drug or investigational procedure. This is also called a lead-in period. This may consist of one visit or more visits. In some studies, there is a wash-out period when participants are asked to stop taking the medication prescribed for the condition being studied for a brief period before starting the study medication. During the baseline period, some of the procedures listed in the study plan will be performed including measurement of vital signs, physical examination or blood and urine testing. These results will later be compared with additional tests and procedures performed after you receive study drug to see how the drug is affecting you.

Treatment: After the baseline period, treatment with the assigned study medication begins. The amount of time you will take the study drug is defined in the study protocol. Treatment may consist of taking only one dose of study drug or may consist of taking the study drug for a longer period of weeks or months. You will usually take the study drug for the first time at the dosing visit. The testing procedures listed in the study plan will be performed within a specified amount of time after you take the study drug. If treatment consists of more than one dose of study drug, after completing the dosing visit, you will be given study drug, a schedule and instructions for the rest of the treatment period. If there is a possibility of receiving a placebo (sugar pill or a substance that looks like the treatment but contains no active drug), you will be told this before you start participation in a study. In some studies, when one group receives placebo during the study, they will be given the opportunity to participate in an open-label extension study where all participants receive the active study drug for a specified amount of time after completing the clinical trial.

Follow-up: Each study will then have a series of one or more follow-up visits at which you will have procedures performed to monitor the effects of the drug over time. The study staff will compare the results from these tests and procedures to baseline results. The staff records any side effects or reactions to the study drug that occur.

Your Safety

To ensure patient safety, the protocol or study plan must be reviewed and approved by an Institutional Review Board (IRB) at each hospital or institution where the study will be conducted. This board consists of people with a variety of backgrounds including clergy, health professionals and patient advocates. In the review of the protocol, the IRB tries to ensure that participants in the study will not be exposed to unreasonable or unethical risks.

Drugs used in clinical trials have been extensively tested in laboratory experiments and animals prior to use in humans. However, some side effects do not become apparent until the drugs are given to humans. Side effects can vary from patient to patient. Periodic reviews of test results and other procedures are carried out while the trial is underway to monitor for side effects. If the study drug is found to be harmful to the study participants or if the risks appear to outweigh the benefits, the trial will be stopped. A trial may also be stopped if it is going exceptionally well and the new treatment or procedure appears to be so effective that the study drug should be made available to the general public.

If any new information becomes available during your participation that may affect your decision to participate in the study, for example, serious side effects or risks, you will be notified by the study staff. You may end your participation in the study at anytime with no penalty. If you do withdraw or the study is stopped early, you may be asked to complete follow-up procedures to ensure your safety.

After the Clinical Trial

After you finish participating in a clinical trial, your name and address will be kept on file by the study staff in case they need to contact you in the future.

Throughout the course of a study, researchers collect data in order to find out how well the treatment under investigation is working. At the end of the study all of the data is carefully evaluated to decide what the next step for the investigational treatment will be. For treatments that have completed early phase trials, researchers will decide if the treatments should move into the next phase, or if they should halt testing because the treatment is either not effective or not safe. When a final phase (phase III) trial ends, the data is evaluated in order to determine if it is effective or more effective than the standard treatment it was compared to in the trial.

Results from some studies are presented at conferences or published in scientific or medical journals. The results will also undergo a process of review by the FDA (Food and Drug Administration) or agencies from other countries, where experts will review the study results to make sure its analysis and conclusions are accurate and valid. Once a treatment has been shown to be safe and effective it is approved by the FDA and becomes generally available as another treatment option for patients and physicians to consider.

Informed Decisions article by John Yee, M.D., M.P.H.
provided by Veritas Medicine

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FREE STANDARD Shipping: MEDclock Medication Reminder products are shipped by Standard Shipping (we select shipping method) FREE. Most items are shipped from our warehouse in Boston, MA. International orders are $15.00 (see below).FREE Shipping & Handling offer is available to U.S. Customers Only.

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